Godt nytår 2011–Happy New Year 2011

Så skiftes kalenderen ud og vi står overfor endnu et sklerodermi år på godt og ondt. Mit 2010 har været en rutschebanetur hvis man blot kigger på min sklerodermi. Det KUNNE have været værre – det ved jeg udmærket. Men for mig – og mig isoleret – så synes jeg at det har været alt […]

Regina Hall – Interview | ABILITY Magazine

Spændende interview med skuespillerinden Regina Hall fra bl.a. Scary Movie. Hendes mor har sklerodermi. Please read this wonderful interview with Regina Hall, known from the movies Scary Movie and the tv-serie Ally McBeal. Her mother is diagnosed with scleroderma and she works hard to spread awareness of this rare disease. Thank you, Regina! Picture from http://blog.abilitymagazine.com […]

Update on my colonoscopy

Ok, so last Tuesday I went to the hospital for my colonoscopy examination. The procedure is mentioned here. The doctor inserts a flexible tube all the way through your colon – every 150 centimeter (5-6 feet). And believe me – that is a lot of colon!! It is said that there are no nerves in […]


This Tuesday I am going to the hospital for a new examination – one I have never tried before and one that I dont want to try. But to check up on my scleroderma and to find out what is happening and where it is happening I need to go through different tests. I dont […]

Itchy curly fingers

My fingers are starting to bother me, as mentioned here. Not much, but they dont work right, if you know what I mean. In the morning they are stiff for some time – for about 30 minutes or so – and then I can bend them into my hand as a “normal” person. Let’s not […]

My story

Ok, this is how it all started for me. In winter 2004 or 2005 I started to suffer from Raynaud’s. I first didn’t know what happened to my fingers. When I went out shopping I could drop the shopping bag on the floor and there was no feeling in the fingers. My fingers were all […]