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(English version below the picture)

Om mig

Jeg er en nordjysk pige anno 1972 med begge ben solidt placeret på jorden omend til tider ret flyvsk.

Uddannet bibliotekar og arbejder som sådan på et lokalt folkebibliotek.

Nyder solen på terrassen – sommeren er min bedste ven. Andre kodeord er film, teater, museer, koncerter, bøger, familien, kæledyr, skov og strand, storbyferier…

November 2007 fik jeg diagnosen systemisk sklerodermi. Det startede med raynaud allerede tilbage i vinteren 2004/2005. Siden er der kommet ting til som ledsmerter, stive fingre, stakåndethed (dårlig kondi?), blanke fingre der også klør, kløende hud i ansigtet, lukkemusklen til mavesækken slutter ikke tæt, begyndende tarmproblemer. Læs mere her på bloggen.

Formålet med denne blog er primært at skrive om min sygdom, at fortælle om mine daglige kampe, at dele links med andre, at henvise til litteratur og andet jeg falder over. Men jeg vil også skrive om alt muligt andet – for det gælder om at leve livet med de værktøjer som det giver dig.

Har du kommentarer, vil du dele oplysninger eller andet kan jeg kontaktes her.

Opdateret 14/4-2016

me

About me

Hi all.

I am a Danish girl born in 1972. As a professional I am a librarian and work at a local library in my city. Enjoy social things like movies, going on café, theatre, museums, concerts. Other words are books, family, sun and warm weather, travels…

In Nov. 2007 I was diagnosed with scleroderma, and it is probably diffuse or systemic scleroderma. It all started as raynaud back in 2004-2005. Now I also have problems with my esophagus (not much but it is there), small digestive problem, enourmous fattigue, fingers being stiff, itching skind on fingers and face. So far no problems with hearts and kidneys. My lungs are giving me a bit challenges. Joint pain. Jaw pain. Mouth wont open up as much as it used to. You can read my entire story here.

This is my blog trying to write out my thoughts, my daily life living with scleroderma, links to share, literature to share, and things like that. But sometimes I will also write about other things, because it is important to live your life, with what challenges it gives you down the road. I have chosen that scleroderma IS a part of my life, and that it is my co-pilot who is sleeping most of the time, while I enjoy life and traveling and much more.

If you have any comments, things you wish to share or other please contact me by filling out the contact form here.

Updated 17/4-2016