June is awareness month and we are making a lot of noise

In April FESCA and the Scleroderma Society of Canada signed an agreement with Boehringer Ingelheim with the intention of working together to advance clinical research and improve awareness of systemic sclerosis (SSc) also known as scleroderma. Read more here.

Because the Danish Scleroderma Association is a part of Fesca, and I am the international contact person from the Danish association, I am working closely together with the team in order to improve awareness of scleroderma.

So a couple of months ago I was interviewed by the media team of Boehringer Ingelheim. The aim was and is to spread awareness of scleroderma.

I was doing the interview along with one of my Italian friends and all in all the interview ended up with 2 hours of raw material for the Boehringer Ingelheim team to work with.

They made this wonderful infographic with statement from me and my  Italian friend.

Later this animation went public.

And on Facebook, Instagram and Twitter, they have been helping us spreading awareness of Scleroderma all throughout June.

For example they made this wonderful mini clip to share on twitter/facebook:

Follow Boehringer Ingelheim via twitter, facebook and instagram. And their website’s section on Scleroderma.

June is scleroderma awareness month, and June 29 is World Scleroderma Day. Learn more at,,

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