Hjem > English, Scleroderma > Long time no seeing

Long time no seeing

I has been a while since my last entry. I know. I am sorry for that. I have been very busy the past months. A lot has happened in my life and my surroundings.

I have been on vaccation to London – visiting a dear friend of mine who lives there. And I saw the beautiful lights in Oxford Street, and also this in Carnaby Street.

carnabystreet

I have also been going to my doctor to control of my scleroderma. A new examination. New test showed that my knees are a bit weak. And I dont walk as long as I should do my age and weight considered. Well, maybe a new lung test? Waiting for the date. And now there is only 1 month to my heart examination. Hope my heart is safe. My raynaud is now treated with cialis, you know viagra. And you know what? I like it. My fingers are worm most of the day. Well, at least if I dont go outside. If it is windy outthere I get a raynauds attack. The cold weather also have an impact on my joints… they are painful. But I’m hanging in there.

Last week I lost a dear friend to scleroderma. Then this She-Devil gets close to you. And you feel powerless. I must say that he was very sick – and the scleroderma was very agressive. It is VERY rare that it has this outcome. Keep that in mind, friends.

But we need more doctors to treat us – NOW PLEASE. And we need more awareness – NOW PLEASE.

Help us, friends – any way you can. Big or small to you – it is TOTALLY BIG to us.

Categories: English, Scleroderma Tags:
  1. Ingen kommentarer endnu.
  1. Ingen Trackbacks endnu.