Scleroderma – Karen Gottesman

The Scleroderma by Karen Gottesman My rating: 4 of 5 stars Being diagnosed with a rare dissease like scleroderma, learning that this might also be deadly dissease, AND a cronic dissease takes the breath from everyone. This book gives you down to earth information of your first year with scleroderma, how to cope with things, […]

Godt nytår 2011–Happy New Year 2011

Så skiftes kalenderen ud og vi står overfor endnu et sklerodermi år på godt og ondt. Mit 2010 har været en rutschebanetur hvis man blot kigger på min sklerodermi. Det KUNNE have været værre – det ved jeg udmærket. Men for mig – og mig isoleret – så synes jeg at det har været alt […]

Living with scleroderma

This great interview is from September 28th from Trinidad & Tobaga. The Foundation of Trinidad & Tobago is taking about the foudation and what scleroderma is. Great work, Scleroderma Care Foundation. [youtube=http://www.youtube.com/watch?v=42i9tJd23lk] [youtube=http://www.youtube.com/watch?v=CikyNrl5aPw]