The Scleroderma by Karen Gottesman My rating: 4 of 5 stars Being diagnosed with a rare dissease like scleroderma, learning that this might also be deadly dissease, AND a cronic dissease takes the breath from everyone. This book gives you down to earth information of your first year with scleroderma, how to cope with things, […]
Så skiftes kalenderen ud og vi står overfor endnu et sklerodermi år på godt og ondt. Mit 2010 har været en rutschebanetur hvis man blot kigger på min sklerodermi. Det KUNNE have været værre – det ved jeg udmærket. Men for mig – og mig isoleret – så synes jeg at det har været alt […]
This great interview is from September 28th from Trinidad & Tobaga. The Foundation of Trinidad & Tobago is taking about the foudation and what scleroderma is. Great work, Scleroderma Care Foundation. [youtube=http://www.youtube.com/watch?v=42i9tJd23lk] [youtube=http://www.youtube.com/watch?v=CikyNrl5aPw]
Digital ulcers are bad and painfull in scleroderma. Around 40% of scleroderma patients get digital ulcers. This article from Scleroderma Care Foundation gives you a few god advices to how to treat and manage digital ulcers. Managing Your Digical Ulcer | Scleroderma Care Foundation.
This is different stories from scleroderma patients – posted on the New York Times. via Patient Voices: Scleroderma – Interactive Feature – NYTimes.com.
In this article is discussed wether there is a link between scleroderma and certain forms of cancer. Many questions arise and the doctors are at the beginning at the research. “Are particular antibodies in scleroderma associated with increased risk of cancer? Maybe we need to look,” she says. “And if you develop both at the same time, […]