annelisesstory

Rare Disease Day 2017

Today is Rare Disease Day. All over the world people with rare diseases spread awareness. And so do I. I have a rare disease – it is called systemic sclerosis. In daily term scleroderma. Scleroderma is an auto-immune disease meaning that your body is attacking itself, the immune system is working against itself. In scleroderma […]

raynaud

How to prevent a Raynaud’s attack

If you suffer from systemic sclerosis (scleroderma), lupus, ehlers-danlos, or other auto-immune diseases, it is most likely that you experience Raynaud’s Phenomenon as a secondary condition to your primary disease. I had Raynaud’s for a couple of years, before I got my diagnosis – systemic sclerosis, also called scleroderma. What is Raynaud’s Phenomenon? It is a […]

New treatment for inflammation in joints

I am in the process of getting ready to start up on new treatment. The past few years I have been treated with methotrexate to help ease the inflammation in my joints. Now the larger joints like hips and knee and shoulders are getting worse and because of that, my specialist and I have decided […]