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June is awareness month and we are making a lot of noise

In April FESCA and the Scleroderma Society of Canada signed an agreement with Boehringer Ingelheim with the intention of working together to advance clinical research and improve awareness of systemic sclerosis (SSc) also known as scleroderma. Read more here. Because the Danish Scleroderma Association is a part of Fesca, and I am the international contact person […]

IMORGEN er International Sklerodermi Dag

IMORGEN er International Sklerodermi Dag. Tag min hånd, og lad os i fællesskab kæmpe for en bedre fremtid for os med denne sjældne sygdom, som kan være ekstremt invaliderende, for ikke nævne livstruende. IMORGEN er dagen, hvor den kendte kunstner Paul Klee døde i 1940, kraftigt påvirket af sklerodermi. Det internationale samfund besluttede i 2010 at gøre […]