From www.sclero.org
Digital ulcers are bad and painfull in scleroderma. Around 40% of scleroderma patients get digital ulcers.
This article from Scleroderma Care Foundation gives you a few god advices to how to treat and manage digital ulcers.
You might know of a friend or a loved one, who suffers from a lifethreatening disease, or some kind of cronic illness.
In this article you find a few ways how to get the kind of support from others.
via Discovery Health “How to Help a Friend or Loved One Suffering From a Chronic Illness”.
This is different stories from scleroderma patients – posted on the New York Times.
via Patient Voices: Scleroderma – Interactive Feature – NYTimes.com.
On the link below from MedicineNet.com you can read about Esophageal Manometry which is a method to determine how the muscle of the esophageal works.
This is one of the problems many scleroderma patients might get.
Esophageal Manometry (Esophageal Motility Study) Procedure Information by MedicineNet.com.
New York Times’ Health section recently covered this story about Raynaud’s Phenomenon – there is also good advice in the comments below the article.
New York Time’s sundhedssektion beskrev for nylig Raynaud’s Fænomen. Her er gode råd og også kommentarer, som svares af NYT’s lægeekspert.
Ask the Expert: Raynaud’s Phenomenon – Consults Blog – NYTimes.com.
Could this be a step on the road for a cure for scleroderma?
Spændende interview med skuespillerinden Regina Hall fra bl.a. Scary Movie. Hendes mor har sklerodermi.
Please read this wonderful interview with Regina Hall, known from the movies Scary Movie and the tv-serie Ally McBeal. Her mother is diagnosed with scleroderma and she works hard to spread awareness of this rare disease. Thank you, Regina!
Picture from http://blog.abilitymagazine.com
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