If you suffer from systemic sclerosis (scleroderma), lupus, ehlers-danlos, or other auto-immune diseases, it is most likely that you experience Raynaud’s Phenomenon as a secondary condition to your primary disease. I had Raynaud’s for a couple of years, before I got my diagnosis – systemic sclerosis, also called scleroderma. What is Raynaud’s Phenomenon? It is a […]
Having scleroderma or other autoimmune diseases means that from time to time you experience this HUGE tiredness. You can sleep and sleep for hours and you are still tired next morning. Why? When you are so tired – I use to say deep into your bones – and sleep does not help, and it starts to […]
I am in the process of getting ready to start up on new treatment. The past few years I have been treated with methotrexate to help ease the inflammation in my joints. Now the larger joints like hips and knee and shoulders are getting worse and because of that, my specialist and I have decided […]
USATODAY.com – Robin Williams talks seriously about scleroderma. Isn’t it great to have someone like Robin Williams, Bob Saget and Dana Delany to help spread awareness of Scleroderma? (Picture from the article)
The Scleroderma by Karen Gottesman My rating: 4 of 5 stars Being diagnosed with a rare dissease like scleroderma, learning that this might also be deadly dissease, AND a cronic dissease takes the breath from everyone. This book gives you down to earth information of your first year with scleroderma, how to cope with things, […]
This great interview is from September 28th from Trinidad & Tobaga. The Foundation of Trinidad & Tobago is taking about the foudation and what scleroderma is. Great work, Scleroderma Care Foundation.