Rare Disease Day 2017

Today is Rare Disease Day. All over the world people with rare diseases spread awareness. And so do I. I have a rare disease – it is called systemic sclerosis. In daily term scleroderma. Scleroderma is an auto-immune disease meaning that your body is attacking itself, the immune system is working against itself. In scleroderma […]


How to prevent a Raynaud’s attack

If you suffer from systemic sclerosis (scleroderma), lupus, ehlers-danlos, or other auto-immune diseases, it is most likely that you experience Raynaud’s Phenomenon as a secondary condition to your primary disease. I had Raynaud’s for a couple of years, before I got my diagnosis – systemic sclerosis, also called scleroderma. What is Raynaud’s Phenomenon? It is a […]